The 30th anniversary of the passing of the ADA is here, and to be honest, I can’t help but reflect on how accessible and inaccessible my life has been made recently in light of the COVID-19 pandemic.
I have a rare genetic condition that impacts all of my joints, organs, ligaments and tendons called Ehlers-Danlos syndrome, type 3. Recently, I have had to reckon with developing symptoms of type 6, particularly dramatic hearing loss and an ongoing developmental curvature in my spine and shoulders because of my stenosis and scoliosis. I also have a few mental illnesses and asthma, placing me in the high-risk category for COVID-19.
When I was diagnosed at the Mayo Clinic in Jacksonville three years ago, I didn’t fully recognize what the diagnosis would mean for the rest of my life. All I knew was that I was in constant pain,